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Wednesday, December 3, 2014

類固醇反彈进入 35 天 - Topical steroid withdrawal day 35

After the third week began without moisturizer. My skin will be very dry and itchy after showers. During which I DIY this:-
 
類固醇反彈进入 35 天,除了颈项和胸在第三个星期发作过后就没有新的反彈了。
在第三个星期过后 就开始不用moisturizer,什么也不要涂,刚开始冲凉过后皮肤会很干和痒,在这期间我 DIY 了这个
 
 
99% water which added a bit of E.M1 bacteria + Tea tree oil ( component rarely on it) use it when your skin is very dry or itchy, which is very effective for itching.
 
水 99% 里面加了一点的 E.M1 益菌+ Tea tree oil (分量很少就可以了) 如果皮肤很干或者很痒的时候就喷,这对于止痒很有效
 
For dry skin problem, I choose not to use an ordinary shower gel. Instead, I made my own soap with olive oil which is a natural skin moisturizer. Besides, also added a Litsea Cubeba Essential Oil 
it has gentle astringent properties work to cleanse your pores, its antimicrobial and anti-inflammatory action minimizes and heals existing flare-ups.
 
对于皮肤干燥的问题,我也不再用普通的沐浴露了,改用自己 DIY 的肥皂,在用油方面我选择了橄榄油,橄榄油是天然的皮肤保湿剂,也添加了山苍子精油,它有温柔的收敛特性工作,净化毛孔,抗菌和消炎作用减少和现有的突发愈合
 
 
After one week , no longer dry and itchy skin , but leave a little time to complete good condition.
 
经过了一个星期,皮肤也不再干燥和痒了,但离开完全好的状况还有点时间。
 
 

Monday, November 24, 2014

類固醇反彈 - Tropical steroid withdrawal

Week 3 of TSW, it starts from above the breasts and the neck
 

I started MW (moisturizer withdrawal) as well. Doctors in Japan have said this helps with healing.

will update it after a week.
 

Wednesday, November 19, 2014

Topical Steroid Withdrawal - keep on update

I found a patient led advocacy group for skin sufferers called ITSAN. The group at that time, comprised of over 600 individuals grappling with withdrawals from topical steroids after realizing they had developed a dependence to the strong drug used for various types of skin conditions.
 
Steroid induced eczema is also called “red skin syndrome” which is an iatrogenic illness caused by the medical treatment used to treat it. It typically starts with a prescription of topical steroids for eczema or other types of skin inflammation. Over time the condition becomes difficult to manage with the same prescription. The patient becomes addicted to the medication, exhibiting worsening symptoms when stopping it. Fortunately, the problem ends with complete cessation of topical steroids, although it is followed by a slow and painful withdrawal process that usually takes a year or longer to heal.
  
 I was shocked when i learned this medicine was causing the problem.
 
Within a few weeks of completely stopping steroids my neck had big, sore lumps on it.
 
 
This photo take after 1st week of flares

Thursday, October 30, 2014

Why Organic Skin Care Products Are More Than a Trend

Going green these days has become less of an eco-friendly sacrifice and more of a hot new beauty trend. Organic beauty collections are popping up all over the place, to the point where some of the best products out there are the organic versions. So when it comes to your skin, get ready: there are a whole slew of reasons why organic skin care products are the way to go.

So why go with organic skin care products in the first place (aside from the whole loving the environment thing)? People with sensitive skin often find that organic skin care products are much gentler than traditional products. Natural products can offer skin solutions that products in regular skin care lines just can't compete with, like improved skin clarity and a glowing complexion without the use of harsh irritants. With all of these natural benefits, it makes you wonder why you ever slathered artificial ingredients on your skin in the first place.

Even though organic skin care products are gaining momentum in department and drug stores, some of the best organic skin care products can most easily be tracked down online. For starters, check out our favorite online website in malaysia:-
 
 
 
 

Thursday, October 23, 2014

TSA: Topical Steroid Addiction and TSW - Topical Steroid Withdrawal

TSA: Topical Steroid Addiction
Sama macam kes2 ketagihan dadah yang lain, selalunya orang ketagih steroid ni bukannya disengajakan.

Kulit kena eczema. Kita gi doctor. Doctor bagi krim steroid. Kita sapu. Kulit kita jadi ok. Kita happy.
Bulan depan eczema naik balik. Kita sapu lagi. Eczema baik. Kita happy balik.
2 minggu kemudian eczema datang balik. Makin teruk. Kita sapu krim aritu. Alamak... tak jalan. Kita gi doctor. Doctor bagi krim steroid lagi kuat.

Kita sapu. Eczema hilang. Pastu dia datang balik. Lagi teruk. Pastu kita sapu lagi. Pastu tak hilang. Pastu sapu krim lagi kuat.
Rinse and repeat.

Nampak tak? Sebenarnya eczema yang asalnya boleh dikawal tanpa bantuan krim steroid. Kita cuma kena jaga pemakanan and persekitaran. Tapi bila kita kenalkan steroid dalam sistem kita tu yang start ada masalah. Sekarang badan kita dah ketagihan. Bila ketagihan ni yang lagi payah nak baik.


TSW - Topical Steroid Withdrawal
Happens when we stop taking steroids.
Orang yang ketagih dadah akan melalui withdrawal symptoms. Macam kita tengok drama melayu yang anak masuk pusat serenti pastu duduk dalam sel ketar2 and meraung2.

Ha sama la badan kita pun mcm tu gak. Badan mintak2 steroid. Bila kita tak bagi dia mintak2 lagi. Dia cakap 'haaa tengok ni! tengok ni! nampak tak kulit dah merah2 dah gatal2... bagi la steroid tu cepattttt!!!!!'

Bila kita tak bagi dia buat perangai.
Fasa TSW ni mmg sangat2 menyeksakan.
Kalau orang2 tersayang tengok kita mcm tu, kalau yg tak tau tu akan marah and paksa suruh amik steroid. Tapi ni serupa mcm bagi mat fit dadah. Bagus ke? Ni memburukkan keadaan aje.
Selalunya TSW period ni depends on berapa lama u dah amik steroid. It will take 1/3 of the time you've been using. So kalau dah pakai steroid selama 10 tahun, so TSW may take 3 years. Maybe more maybe less.

Tengok nasib.
TSW ni datang in cycles. Setengah orang cycle awal tak teruk cycle yang kemudian sangat teruk. Ada gak yang cycle awal amatlah teruk tapi cycle2 kemudian tak terus sangat.

Stop using Steroids and look for Harmful free products
www.natureinabox.com.my

100% natural eczema cream
www.potofgoldbalm.com.my

source from facebook NAAE

SIDE EFFECTS OF TOPICAL STEROIDS

Masa kita mula-lula berkenalan dgn topical steroids kita rasa seronok kan? Sapu sikit je terus kulit kembali cantik. Tapi makin lama kita makin bergantung pada steroids untuk control radang kulit kita. Ramai members kat sini dah lama menjalin cinta dgn steroids… ada yang pernah anniversary ke-18!
Tapi tau tak kalau lama-lama pakai steroids ni tak elok? Cuba tengok side effects dia seperti yang tertera kat bawah ni.

KESAN SAMPINGAN PADA KULIT
1. Kulit pedih/rasa terbakar
2. Kulit yang terkena eczema semakin teruk dari asalnya
3. Kulit menipis – bila kulit semakin nipis, ia makin senang tercedera e.g. senang lebam/bengkak
4. Kulit bertukar warna – rasanya ramai yg kena mcm ni. Bahagian kulit saya yg disapu steroid warnanya lagi cerah dpd warna kulit sekeliling
5. Contact dermatitis – kulit semakin sensitif dan mengalami alahan yang sebelum ni tidak wujud

KESAN SAMPINGAN PADA SISTEM BADAN
1. Kaki bengkak disebabkan oleh bendalir yang terkumpul (ramai jugak kena yg ni)
2. Tekanan darah tinggi
3. Paras kalsium yang semakin menurun (boleh menyebabkan kekejangan otot, pendek nafas & sawan)
4. Osteoporosis
5. Di kalangan kanak2… kadar tumbesaran yang perlahan
6. Cushing’s syndrome (symptom termasuklah kenaikan berat badan yang cepat, kulit menipis, emosi tidak stabil)

Stop using Steroids and look for Harmful free products
www.natureinabox.com.my

100% natural eczema cream
www.potofgoldbalm.com.my

source from facebook NAAE.

HOW DOES STEROID CREAMS WORK ?

Bila kita sapu krim steroid atas kulit kita sendiri ataupun kulit anak-anak, pernah tak terfikir mcmana krim ni melakukan ‘keajaiban’nya? Sebenarnya krim steroid ni melakukan 3 fungsi:

1. MENGUBAH BAHAN KIMIA YG MENYEBABKAN RADANG
Radang (inflammation) disebabkan oleh bahan kimia yang dipanggil “arachidonic acid”. Bila kita sapu steroid atas kulit, ia akan diserap dalam badan dan berinteraksi dgn DNA kita dan menghasilkan sejenis protein yang dipanggil “lipocortins”.
Lipocortins menghalang arachidonic acid ni…. Sebab tu bila kita sapu steroids radang berkurangan.
Tapikan….. sbnrnya sang penjahat si arachidonic acid ni sbnrnya berasal daripada makanan macam daging, telur dan tenusu (dairy). Sbb tu penghidap eczema ni disarankan utk jaga diet.

2. MENGECUTKAN PEMBULUH DARAH
Korang perasan tak bila kulit tu dah gatal semacam, bahagian yg gatal tu jadi warna merah dan terasa panas? Ini terjadi sebab bila kita menggaru, pembuluh darah mengembang kat bawah kulit kita.
Steroids ni tolong kecutkan pembuluh darah yang dah kembang akibat perangai kita yang asyik nak menggaru tu.

3. MENGUBAH SEL SISTEM IMUN KITA
Eczema adalah sejenis penyakit autoimmune – system imun kita ni terlebih ‘rajin’ pulak dah. Bukan jer takat serang bendasing dalam badan kita, badan kita sendiri pun dia pi serang sebab dia tak boleh nak beza badan sendiri dgn bendasing. Hadoihh…

So immune system pesakit eczema ni dgn bersungguh2 la buat kulit pesakit tu radang (inflamed) kononnya nak bagi warning la ada bendasing dalam badan… padahal takde apa2 pun.
Steroids akan membuatkan immune system kita ni ‘tidur’… so dia tak buat havoc kat badan kita.

Cuba kita fikirkan kejap... bayangkan immune system kita ni mcm askar yang jaga istana kita. Dia tak boleh nak beza mana perompak yg nak masuk and mana penghuni istana. So instead of kita ajar dia untuk kenal siapa penghuni siapa perompak,, kita pi bagi ubat tidur pulak kat askar2 kita ni… hahahaha… pasni penghuni tak kena tembak. Tapi perompak pun terlepas masuk gak.
Best kan?

APA ITU ECZEMA ?

Sebenarnya 'eczema' ni terma yang digunakan untuk describe segala jenis radang kulit yang gatal.
Eczema ada banyak jenis sebenarnya. Kalau nak tau jenis2 eczema dan rupa dia mcmana sila klik link kat bawah.

CARA2 RAWATAN CONVENTIONAL

Typically kalau kawan-kawan gi klinik ataupun pakar kulit, Doktor akan beri 3 jenis ubat:
1) Krim (topical steroid/non-steroid) - Untuk sapu pada kulit
2) Antihistamine - untuk legakan rasa gatal
3) Antibiotik - Kalau kulit dah mula luka2 & start berair doctor akan bagi antibiotics untuk stop/elakkan infection


PENDEKATAN DOCTOR
Doctor menggalakkan penderita eczema untuk mengamalkan 'rawatan dari dalam.' Penggunaan krim steroid dilarang sama sekali kerana kesan2 sampingan yang lebih memudaratkan daripada penyakit eczema itu sendiri.
Penggunaan antihistamine dan antibiotik juga hendaklah dikurangkan dan akhirnya dihentikan terus.

http://nationaleczema.org/eczema/types-of-eczema/

What is photosensitivity

 
Sun allergy, also called photosensitivity, occurs when the body's immune system overreacts to sunlight exposure. Patients who are allergic to sunlight typically develop an itchy red rash on areas of the skin that were exposed to light. In rare cases, some patients may develop hives or blisters. Patients of all skin tones (from light to dark) can develop skin allergies. It remains unclear exactly why sensitive patients develop this reaction. It is believed that light causes changes in parts of the skin that are exposed to the sun. The body then identifies this sun-altered skin as a foreign substance, the same way it would bacteria or viruses. This triggers the immune system to launch an attack, which produces symptoms of an allergic reaction. Sun allergy, also called photosensitivity, occurs when the body's immune system overreacts to sunlight exposure. Patients who are allergic to sunlight typically develop an itchy red rash on areas of the skin that were exposed to light. In rare cases, some patients may develop hives or blisters. Patients of all skin tones (from light to dark) can develop skin allergies. It remains unclear exactly why sensitive patients develop this reaction. It is believed that light causes changes in parts of the skin that are exposed to the sun. The body then identifies this sun-altered skin as a foreign substance, the same way it would bacteria or viruses. This triggers the immune system to launch an attack, which produces symptoms of an allergic reaction. In some cases, chemicals from products that are applied to the skin (like lotion or perfume) or chemicals in oral medications (like antibiotics or diuretics) may lead to an allergic reaction to sun exposure. Photosensitivity is not the same as sunburn. Photosensitivity occurs when the body's immune system reacts to light. Sunburn, on the other hand, occurs when the amount of sun or ultraviolet light exposure exceeds the ability of the body's pigment called melanin to protect the skin. In some patients, the sensitivity to light gradually declines with subsequent exposures. If a cream, ointment, perfume, or other chemical is causing a sun allergy, patients should discontinue using the product and symptoms will subside. If a medication is causing symptoms, a healthcare professional may recommend discontinuing the medication or altering the dose. Once the offending chemical or medication is discontinued, the patient will not have allergic reactions to sunlight. Some patients may need to minimize their exposure to sunlight. However since Vitamin D is essential, please find suitable times for skin exposure (before 9am and after 5pm)
 
Q: Can food trigger photosensitivity? A: Yes, several foods are suspected of promoting photosensitivity, including: celery, parsley, parsnip leaves, carrot leaves, figs and citrus fruits.